In this episode, Cindy Brown of All About You Entertainment joins us to share the heartwarming story of how she and Anne, Hallie Grace’s mother, crossed paths in the most unexpected way. Cindy and Anne unite with Savannah’s community to bring their dream to life—the first annual Butterfly Ball. As they dive headfirst into planning the event, Cindy and Anne discover the true power of teamwork and community spirit. Join them as they navigate challenges, enlist the help of local businesses, and witness the magic that unfolds when a town comes together to make a dream a reality.
UPDATE on NEW EB Treatment
Just days ago, the FDA approved the first official treatment for Dystrophic EB. This is a huge step forward in the EB Community @wefighteb - The FDA has given the green light to Krystal Biotech's VYJUVEK, a topical gene therapy. Get more info at debra.org
Learn more about the voices in this episode:
• Anne Davis
Email: butterfly@hallieflies.com
Facebook - Hallie Grace, Tiny Butterfly Warrior
Instagram - tinybutterflywarrior
Raise Awareness - In Loving Memory of Hallie Grace Davis (hallieflies.com)
Donate to Heroes for Hallie Grace
• Cindy Brown
Instagram - @allaboutyouentertainment
Facebook - AllAboutYouEntertainmentLLC
Pinterest - @allaboutyouentertainment
Hosted & Produced by Dee Daniels with DeeDanielsMedia
Theme song written and performed by Hallie Grace
Version: 20241125