The Grace, Grief and Grit Podcast

Finding Strength in Vulnerability: A Father's Journey Through Grief

Welcome to the Grace, Grief and Grit Podcast Season 2 Finale. Join host Dee Daniels as she sits down for an emotional and inspiring conversation with Joe Davis, a father who has bravely shared his journey of losing a child.
 
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In this reflective episode, Joe opens up about the progress he's made since his last appearance, his struggles with vulnerability, dealing with triggers and grief, and the complexities of maintaining his faith. Joe also discusses the importance of being a vulnerable sounding board for others, the difficult balance of recalling certain memories as time goes on, and the hopeful advancements in EB research.
 
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This episode honors the strength and resilience it takes to navigate life's most profound losses while still finding moments of connection and joy.
 
Thank you for listening! Please rate and review this podcast - and share the episode with others to help spread awareness of the continuous work to find a cure for EB.
Learn more about EB and the voices in this episode:
Tap HERE to become a HALLIE HERO
Tap HERE to connect with Hallie's Story
EB in depth
Meet the family behind Heroes for Hallie Grace
Donate and Join the Fight
Proudly hosted and produced by Dee Daniels Media

A Night of Stars and Strength: The LA "Rock4EB" Experience

In this episode of the Grace Grief and Grit podcast, producer Dee Daniels interviews Anne and Joe Davis about their impactful trip to Los Angeles for the Rock4EB event.
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They discuss the significance of the event, designed to raise awareness and funds for Epidermolysis Bullosa (EB), and their personal experiences meeting notable celebrities like Brad Pitt and Courteney Cox.
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The Davises share stories of kindness and generosity from the attendees, the emotional connections made, and the impressive sum of over a million dollars raised for EB research. They reflect on the importance of unity among EB organizations and how events like these inspire further growth and collaboration.
Thank you for listening! 
Learn more about EB and the voices in this episode:
Learn more about EBMRF
Tap HERE to become a HALLIE HERO
Tap HERE to connect with Hallie's Story
EB in depth
Meet the family behind Heroes for Hallie Grace
Donate and Join the Fight
Proudly hosted and produced by Dee Daniels Media

From Awareness to Acceptance: The Power of Inclusion with Author Dennis Vanasse

Welcome to the 'Grace, Grief and Grit' Podcast! 
In this episode, producer Dee Daniels and co-host Joe Davis welcome a very special guest - educator and author, Dennis Vanasse. Dennis shares his journey of writing inclusive children's books, focusing especially on his book 'Everyone Belongs' which discusses Epidermolysis Bullosa (EB).
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The conversation delves into Dennis's inspiration, the impact of his work, and the importance of acceptance and awareness in education. Dennis's background in special education and his personal experiences shape a compelling narrative around inclusivity and understanding. The episode also highlights advancements in EB treatments and the ongoing efforts to foster a supportive community for individuals with EB.
 
Thank you for listening! 
Learn more about EB and the voices in this episode:
Find Dennis on Instagram
Tap HERE to see all of Deniss Vanasse's books
Tap HERE to become a HALLIE HERO
Tap HERE to connect with Hallie's Story
EB in depth
Meet the family behind Heroes for Hallie Grace
Donate and Join the Fight
Proudly hosted and produced by Dee Daniels Media

Uniting for Change: A Conversation & Call-to-Action on Giving Tuesday

In this special episode of the Grace Grief and Grit podcast, producer Dee Daniels hosts a full house featuring Jenny Brewster, Tyler Cobb, and Megan Mason, all board members of Heroes for Hallie Grace. The group shares personal stories about how they became involved with the nonprofit and discusses the crucial mission of supporting families affected by Epidermolysis Bullosa (EB).
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They highlight various ways the community can contribute, including becoming a Hallie's Hero through monthly donations, participating in the annual Butterfly Ball, and supporting the organization's fundraising efforts. The episode emphasizes the importance of Giving Tuesday and aims to inspire listeners to donate and assist in the fight against EB. Key actions include visiting the website HallieFlies.com, following Tiny Butterfly Warrior on social media, and spreading the word about the organization's impactful work.
 
Thank you for listening! 
Learn more about EB and the voices in this episode:
Tap HERE to become a HALLIE HERO
Tap HERE to connect with Hallie's Story
EB in depth
Meet the family behind Heroes for Hallie Grace
Donate and Join the Fight
Proudly hosted and produced by Dee Daniels Media

Integrative Health Therapy with Desiree Sparrow: Mindfulness and Self-Care

In this episode of the 'Grace, Grief and Grit' podcast, hosts Dee Daniels and Ann Davis welcome special guest Desiree Sparrow, an integrative health therapist, yoga instructor, and minister - who also works at a Children's Hospital in Philadelphia.
 
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Desiree shares her journey into integrative health, driven by her personal history with anxiety and trauma. The conversation delves into the importance of mindfulness, meditation, and yoga as tools for managing stress, medical conditions, and rare diseases. Desiree discusses practical techniques such as sensory anchoring and the RAIN method to help caregivers and patients regulate their nervous systems. She also emphasizes the significance of self-care and self-love, breaking down the misconceptions about yoga and mindfulness practices.
 
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This episode provides valuable insights and practical advice for anyone seeking to incorporate these practices into their daily lives to improve mental and physical well-being.
 
Thank you for listening! 
Learn more about EB and the voices in this episode:
Tap HERE to connect with Desiree
 
Tap HERE to connect with Hallie's Story
EB in depth
Meet the family behind Heroes for Hallie Grace
Donate and Join the Fight
Proudly hosted and produced by Dee Daniels Media
 

Navigating Hope: Conversations with EBRP's CEO Michael Hund

In this episode of the Grace Grief and Grit podcast, hosts Dee Daniels and Ann and Joe Davis sit down with Michael Hund, the CEO of EB Research Partnership (EBRP).
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Michael shares the mission of EBRP, which is the largest global organization dedicated to treating and curing epidermolysis bullosa (EB). They discuss Michael's journey in joining EBRP in 2017, the learning experiences along the way, and the transformative impact of his work.
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Michael emphasizes the importance of hope in the EB community and highlights the broad range of ongoing research projects aimed at treating various subtypes of EB. The conversation wraps up with a call to action for listeners to get involved and support the EB community in any way they can.
 
Thank you for listening! 
Learn more about EB and the voices in this episode:
Meet Michael Hund and LEARN MORE about EBRP
Tap HERE to connect with Hallie's Story
EB in depth
Meet the family behind Heroes for Hallie Grace
Donate and Join the Fight
Proudly hosted and produced by Dee Daniels Media
 

Connections: Capturing the Story with Lyle Dillie

Meet Lyle Dillie! For dependable photography and videography services that offer quality outcomes with professionalism and attention to detail, your search ends here. We're so thankful to Lyle for providing top-notch videography services for the 3rd Annual Hallie Grace Memorial Ball for EB.
Lyle's expertise lies in Portrait, Nature, and Commercial Photography. He strives to create a comfortable atmosphere to naturally capture people's interactions. Additionally, he is passionate about nature photography, aiming to encapsulate Georgia's scenic beauty during each of the four seasons.
Thank you for listening! 
Learn more about EB and the voices in this episode:
Meet Lyle Dillie
Tap HERE to connect with Hallie's Story
EB in depth
Meet the family behind Heroes for Hallie Grace
Donate and Join the Fight
Proudly hosted and produced by Dee Daniels Media
 

Goals, Dreams, and the Power of Connection: We had another BALL!

Anne and Joe Davis are here to celebrate the success of the 3rd Annual Hallie Grace Memorial Ball for EB!
First - a BIG THANK YOU to all who were able to attend, volunteer, or support in any way. We did reach our financial support goals for the ball!! Secondly, we continue to evolve and grow as an organization. This year we saw firsthand our vision of "more connection" come to the surface. 
Hallie Grace Davis is a beautiful soul that continues to create an impact on our world - and certainly within the EB community. It's not too early for you to be a part of the next ball, as well as help fund the important research that is going on right now for more treatments and a cure. 
Thank you for listening! 
Learn more about EB and the voices in this episode:
Tap HERE to connect with Hallie's Story
EB in depth
Meet the family behind Heroes for Hallie Grace
Donate and Join the Fight
Proudly hosted and produced by Dee Daniels Media

Grief: Exploring the Communication of Emotions with Dr. Nicholas Christakis

Nicholas A. Christakis, MD, PhD, MPH, professor at Yale University, is a sociologist and physician who conducts research in the areas of social networks and biosocial science. He directs the Human Nature Lab.  
The author of four books and over 200 articles, Christakis was elected to the Institute of Medicine of the National Academy of Sciences in 2006 and was made a Fellow of the American Association for the Advancement of Science in 2010 and a Fellow of the American Academy of Arts and Sciences in 2017.
On this episode we are talking to Nicholas about his book, "BLUEPRINT: The Evolutionary Origins of a Good Society". In Blueprint, he introduces the compelling idea that our genes affect not only our bodies and behaviors, but also the ways in which we make societies, ones that are surprisingly similar worldwide. 
He brings some impactful questions related to grief to the table, like: Why do we have this capacity for grief? Why is it helpful for us as humans to have the experience of the emotions around grief? 
"Emotions are a very primitive form of communication that far preceded our capacity for language - it's a more sophisticated type of communication."
Thank you for listening! 
Learn more about EB and the voices in this episode:
Meet Dr. Nicholas Christakis
Learn more about the book "Blueprint: The Evolutionary Origins of a Good Society"
EB in depth
Meet the family behind Heroes for Hallie Grace
Donate and Join the Fight
Proudly hosted and produced by Dee Daniels Media
 

THIS is what a Support Team looks like! Life Grows Around the Grief: Parents Holding Space for Parents

"It's not, obviously, the way we would want to meet, but I'm so grateful that we did" - Anne Davis says this in regard to becoming "chosen family" with Kaytlynn and Anthony - parents of Addilynn Grace - who had severe Junctional EB - and passed away on December 22, 2022. 
Katlynn and Anthony include Addilynn in everything they do. They also do so much to raise awareness about Epidermolysis Bullosa. Both families take much needed time in this episode to hold space for the grief journey and share stories about their beautiful "butterfly" children. 
Anthony says, "looking back - we were so worried about taking care of her - we didn't realize she was the one taking care of us". 
Thank you for listening! 
Learn more about EB and the voices in this episode:
EB in depth
Meet the family behind Heroes for Hallie Grace
BUY YOUR TICKETS to the 3rd Annual Butterfly Ball
Donate and Join the Fight
Proudly hosted and produced by Dee Daniels Media